Thursday, August 15, 2013

Sick Boy, First Day of School Girl

James has not been feeling well for the past 2 weeks. What started as a sore throat blossomed into a cold, which oozed into a sinus infection, creating post-nasal drip, which set up a nasty reaction with said sore throat ...

From WebMD, which has some
great info about coughs
We've tried steamy bathroom sessions, lots of water, rest, and simple routines for him. It's not getting better; he keeps relapsing. Last weekend I took him in to the doctor, who thought he might be starting a sinus infection and prescribed antibiotics and refilled his anti-nausea meds.


Today was his sister's first day of school. For months, she's planned to show up at the first day of school with purple hair. As long as it wasn't permanent or semi-permanent, it was okay with her principal and parents. This morning - James started moaning and acting like he was going to throw up.

I quickly called in and got him a doctor appointment. My husband got ready in record time to drive our daughter to her first day of school, me to work, and then James to his appointment. It was that extra chaos twist out of nowhere that seems common with special needs families.

Good thing my daughter and I prepped the night before for lunches, backpacks, and clothing ... because I made sure I had the time to turn her hair purple. It wasn't right that her long-planned feat for opening day of school to evaporate, dang it! Splat chalk is a very fun thing, by the way.

Good thing I made extra coffee. Because over the past 2 weeks I think I've been able to sleep through the night about 4 times, and I am tired.

Good thing that my husband was able to take James in so promptly. His pediatrician couldn't find anything new, but she did recommend staggering the evening meds. So we did, and I used one of the anti-nausea pills (well, half of one eventually made it into James) to help keep the antibiotic and cough medicines down.

Now I am listening to the crickets sing away madly, outside our quiet house. I am hoping for lots of healing sleep tonight for us all.

Wednesday, August 14, 2013

Special Exposure / Wordless Weds: Summer's Wane

Another slow and sunny afternoon at the Ranch. James' sister and I picked apples, and watched the sun go down. California is beautiful in the summer.






With school starting soon, and our routines in constant juggle mode, peaceful afternoons like this are much appreciated!


For more images from the heart and to share some of yours,
visit Special Exposure Wednesday at 5 Minutes for Special Needs.
5 Minutes for Special Needs





               and ... Wordless Wednesday

Wednesday, August 07, 2013

Special Exposure / Wordless Weds: Rides

James did something new at the County Fair this year - rides!

In previous years, he'd frantically tell me "No, I don't wanna!" The noise from both the rides, their soundtracks, and their passengers, combined with the excessive motion, were a big sensory overload for him. He'd watch from the Midway for a while, once he was assured he didn't have to get too close to an attraction.

The biggest thing was he volunteered "I want to ride on the caterpillar." Wow. I took James on Big Thunder once (at his request - he loves trains and everyone else was going on it) and had to physically restrain him from jumping off the whole way.


It set a new tone for enjoying the rides this year, and I took a few pictures to celebrate:








Even better? Because we got in free by doing contest entries, I had that money to buy lots of ride tickets!


For more images from the heart and to share some of yours,
visit Special Exposure Wednesday at 5 Minutes for Special Needs.
5 Minutes for Special Needs





               and ... Wordless Wednesday

Tuesday, August 06, 2013

People Who Shine

For various reasons, I have been reflecting on a line from one of my favourite movies:

"Character is what you are in the dark."
Buckaroo Banzai rocks, just saying.

Yes, things are dark. And then there are people who come across our dark patches, and shine. They can mean so much by just being who they are.

We were so lucky to have met with one for James' second aide last school year. She wrote simple affirmations for him that made all the difference. Really, the words written on a 3x5 card that read "I am smart" and "I can do this" made a blazingly positive change for the better for him in school, and encouraged me to change direction myself.

The man at the craft and hobby hall at the county fair, who made a decision to being his miniature train park project to the public and spend all afternoon at the table so he could share his excitement with others, and make the time to ask kids to take a look. He then encouraged them to share what they thought and he *listened.* It's rather rare for someone to give others the time and space to form original thoughts and then receiving their perspectives with relaxed and obvious delight.

Tonight, another person shone brightly for us -- the woman who cuts our hair. It's a bit of a drive to get to her workplace, so I don't see her often. She does a fabulous job with cutting my daughter's long hair and giving me a clean, yet sassy, look. Always friendly and encouraging, we love to visit with her. For a few months, I'd been thinking she'd be the perfect person to give James his first non-mom hair cut. She works with horses, has children of her own, and James has been on hand a few times while we had our hair done.

James is also going through a phase of imitating his older sister, so I figured that might further help him get his first hair cut from a professional. I called and discussed it with her, outlining his sensitivities and reactions and asking if she'd be willing to try giving an autistic 8 year-old his first haircut in a shop. Bless her, she said yes. And not only that, she was upbeat about it.

But she did not just cut his hair - oh no. She asked his permission to cut his hair first, and told him it would make her happy if he let her try. She talked gently and coaxingly through the swift cut, and he never once shrieked or twisted, although he did flinch. When he became apprehensive, she let him touch and hold the scissors or comb so he could get used to it. After, she thanked him and told him how handsome he looked. James grew an inch taller at that, I tell you.

Best part for James? She played hide-and-go-seek with him all the time my hair colour was setting. Right there in the salon! Luckily, it was after regular hours. While she was cutting my hair, James and his sister took turns playing the game in the many rooms and hallways. Then it got quiet, so we sought the kids out. They were in a massage room, playing. Both kids got suckers and on the ride home I played the car CD, which was Christmas instrumentals. They were very happy and have already asked how soon could we go back.

I can never thank people like her enough. They pick me up and keep me going. And I am so grateful for the reminder of light in the dark.

Monday, August 05, 2013

Magic Marker Monday: Oobleck

Some writing James did during summer school. I asked him what that strange word was. "Oobleck," he said. What is that? From James' description, it's a combination of Play Dough and slime; and it's lots of fun to play with.

Love his illustration too!
I am so glad they not only made something, but that they could also play with it, and then write about the experience after. I am also really glad it did not come home in his backpack!


For more great masterpieces or to share some of your own, visit
5 Minutes for Special Needs for more Magic Marker Monday.

            Special Needs Blog                      Photobucket
 

Friday, August 02, 2013

"Do You Want to Play?"

When I picked up James today, he was yelling gleefully, bopping a white balloon up in the air and laughing. I asked the counselor how long he'd been doing this. Ten minutes, apparently.

Because Carnival week goes out with a bang, I took a few pictures. While I was doing this, another boy wandered into the main hall where James was. "Hey - do you want to play with me?" he asked.

Another first. I don't think I can remember James spontaneously asking someone else to join him in a game in progress.

The other boy was on his way to eat his lunch, so I wound my photo shoot and we headed for home. So proud of my kiddo.

Another Reason to Love Camp

When I picked James up at summer camp yesterday, one of his  counselors informed me that he'd spent 45 minutes playing Go Fish with some of the other kids and counselors.

45 minutes? A card game? With others???

Awesome!!!!!!

Another best-case scenario for community involvement and full inclusion. And now I can add another item to his Activity Board.

I am thinking about this image for the board - what do you think?