Friday, December 05, 2014

At the OR

Waiting is awful, when you are outside the OR. Even for minor procedures, such as the one James is undergoing right now, it is tough on the psyche. I hold his hand and smile, and try to not think of anything that could go wrong. We've sliced fruit, ninja-style. We've watched PBS kid programs. I helped him take his meds, hold the mask, and now I am waiting. Watching his number on a board and waiting for it to change from blue to pink, so I can sit by him in recovery.

Friday, November 28, 2014

Thankful Thursday, Special Edition

Thanksgiving post, a little late. Despite not having to host a gathering, still a lot to accomplish. A lot of wishes and pleas this Thanksgiving, mainly for health and fortitude for loved ones, among all the things to be thankful for. Stressful times, they keep on coming. Good things and people keep us going.

Yesterday, while baking side dishes to share at a family gathering, I observed James and his sister at play. I love it when this happens. It was mainly KJS, their version of follow-the-(older sister)-leader.

James did really well with the math questions thrown at him. Zumba time on my old aerobics step was priceless to eavesdrop on. The game was is old Curious George memory game. Story time hit a detour and turned into ....

Adop-a-pet!
James his bedhead ... and Doug

Big Sister and Kitty Boy

Most fun baking ever! Hope everyone enjoyed a good day with family and friends.

Tuesday, November 18, 2014

Things. in. Their. Places.

James has not really lined up toys in order, the way some kids on the spectrum do, but he has a very definite idea of what things go where and can obsess over things out of place.


Like tonight, when I made him change his seat on the way home, because there were bags in the back, where he's been sitting for the last few months (ever since he and his sister got too big to share a row in the car).

Oh. My. Goodness.

Twenty minutes of "I don't like _insert everything under the sun_" and "let me out Right Now!"

aaaaaaaaaaaaaaaall the way home.

And then he was fine. I am working on that myself.


Monday, November 17, 2014

Holiday Talking, Brought To You By the Letter "I"

Trying something a little new this year - talking about Thanksgiving and being thankful. A bit of a challenge when he's found the VHS tape of Sesame Street episodes I taped when he was a baby. He's focused on the subway scene at the end credits and why Big Bird has long legs.

We did manage to establish that Thanksgiving is when people give things like turkeys and chicken!

I explained that I am thankful for things like ... his smile, our family, a nice house, and good friends.

With a little prompting, James shared he's thankful for I Spy Treasure Hunt at the library.

Of course.


Sunday, November 16, 2014

CSI Elementary: The Case of the Missing Underwear

The time: Last Thursday. The place: school campus. The call: More clean underwear mom, STAT.


I delivered the goods in a manilla envelope, clearly labeled, for delicacy's sake. The front desk took them. The aide confirms receipt. Since then: poof. They have disappeared. About half the underwear in his wardrobe is now gone. We have confirmed they are not hiding out at home. Hoping the name on the envelope helps locate it at school.

Otherwise, I need to go shopping. Maybe these will keep this from happening again?
They are even Hanes, his favourite brand.

Epilogue: The perps were nabbed at a relative's house.  Case closed! 
                *cue the electronic gavel sound*

Saturday, November 15, 2014

Planning the Holiday Avalanche Campaign, 2014

Thanks to The Peaceful Mom for inspiration
Well, the IEP, Walkathon, Book Fair, School Photos, Halloween and first report cards are now behind us. Time to seriously get thinking about the holidays. Yes, I have become that person out of necessity. Especially now that I working full time again, and have to deal with Winter Break coverage for the kids.

Who collectively have birthdays right before and after Christmas and New Years. Well planned ...not!!

I have counted my PTO and booked it all away ... praying no one gets sick before then. I should be able to spend a good chunk of time with the kids over the hols this year. Trying to figure out childcare that last week between  the time our wonderful regular care person goes home for the holidays and the kids are off and I can start taking time to be with them is going to be a bit tricky.

I have started research for holiday and birthday gifts. It's looking like they've way outgrown their older bikes, so it might be time for some bigger ones. I have lots of ideas for James' older sister. For James, however, it can be a challenge to find something fun that he will enjoy that is NOT an electronic game or device.

So far, I am looking at all things I Spy, as it's high on his interest radar, helps his vocabulary and interpersonal play/communication, and has gift-worthy items that are not limited to books or electronic games.

James likes music so much that I'd like to get him some kind of music player ... preferably one that does not involve too much money and survive his inquisitive nature (he likes to disassemble things).

While James did love building and playing with the marble run a few years back, it was difficult to keep set up and the pieces started disappearing, so no LEGOS or little do-hickey play kits. Although these Squiz tempt me into thinking this might be something he'd enjoy playing with, and help his finger fine motor skills. Likewise, the Squap, which he could play with family or friends, even indoors.

I dunno .. open to suggestions here!


Wednesday, November 12, 2014

When Meltdowns Destroy The World

Thanks to Defying the Spectrum for this infographic
We've been up, down, and all around. We skirted a head cold just before Halloween. James has had good days, and ones where self care issues are still interfering with school. He's decided food is evil and refuses to eat foods he's enjoyed for years. I've resorted to constant snacks and calls to get help from a nutritionist.

I've found out that James has not been receiving his 2x weekly speech sessions at school over the past 3 weeks, as the therapist has been out on medical leave. I had to ask if he was getting them to find this out. Now I am asking what the make-up plan is. Communication and speech continue to be struggles for James. Sources of frustration.

There's been a run of healthcare issues that involve more angst and cleaning labor than illness. My eczema is having a fine time and is currently well on its way to splitting open the skin on all my right fingertips.

I am helping my daughter work out that the badly worded math word problems are asking for. Oh the irony. I long to answer "who cares?" for many of said word problems. James and I are working on his reading log. There is not a lot of free time in the day. At night, James has been waking up regularly at 11pm, crying. I help him to the bathroom and he starts hicupping, which makes him furious. I coax him back into bed and he crashes. I am wrung out.

Through it all we've been hanging in there. Discouraged and tired at times, but plugging along. Until this afternoon. When James decided to bug his sister while she was finishing her homework. He ignored requests and warnings to stop. He earned a time out. A meltdown ensued over the next 90 minutes.

Oh. No. All the plans I had for the afternoon (write a letter, bake some breakfast muffins, do some cleaning) went right out the window. Everything narrowed down to helping my daughter finish her math and staying calm while trying to get James to calm down. Both eventually happened. By the time James calmed down, homework was finished and he'd lost iPad privileges for the rest of the day. Most of the afternoon had gone.

I am sapped. And worried. James is going to be a big guy. He gets very upset when people attempt the shush him or restrict him. I am worried about his teenage years and beyond. I want James to have words and tools to express how he's feeling and try and get what he needs  ... not have meltdowns.

I finally figured out James needed to eat. His mood improved quite a bit after he ate something. I am still worried. Hoping we have a good night's sleep, and tomorrow is a better day, with no meltdowns in it.