I am taking a break from paperwork and spring cleaning in my bedroom den, sitting in my armchair and listening to James and his behaviour interventionist (BI) make a schedule for their time this afternoon and following through. It's a deceptively easy blend of hygiene tasks, games, and breaks.
I love it best when I hear them playing a game, because James wants to be socializing with others and this is a great, gentle way to give him practice for that.
Over the past couple of years, James has stopped wanting to sing, play card or board games, or read together with me. It's hard to get him to watch TV with me. Most of our bonding time is in cars or taking public transportation (trains and metro transit for fun). I get it. He needs his own friends, his own people.
What is ABA?
Applied Behavioual Analysis (ABA) helps us both by reinforcing the importance of hygiene, game playing, and socializing. Communicating and planning (intention) are worked on as well.
Why I think ABA Works for Us
Behaviours
I see ABA as important because for someone like James, who has communication challenges, is smart, and prefers to avoid activities not of his choosing ... behaviours have become his communication when words fail. Eloping, swearing, or inappropriate scripting ... ripping paper, destroying his DVDs and old CD ROMs, throwing things out his window.
When James is stressed, he exhibits more behaviours. After COVID-19 quarantine started, we had spitting on the floor, paper in the mouth, wall hitting, head banging, and yelling - capped off with intense 2-hour meltdowns in which I was on high alert to keep James in the house, safe, and offered calm encouragement to breathe. He shut down on hygiene and participating in remote learning. He grew inches and entered puberty with a vengeance. He regressed on top of his previous regression. He started to exhibit extreme OCD and was almost impossible to transition anywhere in the house, let alone to the car or to an appointment at an office.
In-Home Support
Having ABA in the home (as soon as it became available) was a real life saver. The BI could be with James for remote learning, support hygiene, offer a safe and social connection. What a relief to have a team to break up the monotony of Just Mom. It also allowed me to keep working from home. I bought an air purifier and lots of antibacterial wipes. The ABA team all wore face masks.
Understanding Why and Setting Goals for the Client
The behaviours were analyzed by the ABA team to determine why they happened. A plan was crafted to redirect and support healthier self care, rebuild communication, and provide tools to help move us both forward when we got stuck. Goals were set so progress could be reported and any new behaviours could be addressed as soon as they were noticed.
The goals were aligned with what I advocated - James is a social guy who is curious about and likes people. He gets a lot of positive experiences by being able to interact with people and is almost giddy when he can communicate and create connections with others. He likes periodic contact on FaceBook and is happy to text and call people on the phone. All of his current ABA goals support that (as well as many of his IEP goals at school). He will need all these skills and tools after I am no longer here.
I know there are those in the autism community who feel the focus should not be on fitting into the neurotypical world, and I say good for them. Autism is a really unique condition. I would hope that any ABA program will align with the goals of the client, or those who understand and advocate for them as needed. I hope that there will be greater understanding by the general public and organizations for those who are differently abled. There really is a lot to discover.
