A Blog to chronicle my son's journey through developmental delays and dealing with austisic spectrum disorder.
Thursday, April 15, 2010
Bright Colours
I love bright colours on James. They make him easy to spot and track in a crowd. They match his personality. I do not understand the concept of camouflage-patterned clothing for boys. I need to know what this guy is up to, and where he may be headed. The running away has tapered off, but he gets interested in many things and does not always stop and check in before he heads off to explore.
Hmmm, what to wear on Saturday at the Autism Walk? I think something red is a must for James. He loves to wear this colour. He's liked to wear yellow pullovers a lot this winter too, which brightens my day (although his smile is much brighter).
Thank you so much to everyone who's donated and supported us in this walk. It means so much!
Wednesday, April 14, 2010
Special Exp. / Wordless Wednesday: Stairs
What did James love most about the place where way stayed last week? Stairs! We don't have them in our house. I'd have let him climb them over and over ... except there was a room downstairs with a TV & VCR, and he just would NOT stay away from all those buttons ...
So we'd have some play time each day on the stairs. I think he liked the carpeting too. It's good to see him hanging on to railings and supporting himself, evening pulling himself up with his arms. He's been getting better at this on the monkey bars, and things like this help even more.
Although I doubt there will be stairs at the event, I plan to take my camera along this Saturday on the Walk for Autism Speaks and get a few special shots of James on his 2 mile walk with me. He is sure to find something fun to explore!
For more great images or to join in the fun, Visit Special Exposure Wednesday at 5 Minutes for Special Needs. Please, please, please -- check out today's Special Exposure Wednesday post. It brought tears to my eyes (good ones), because we went through something very similar with James last year, minus the boat. A very happy birthday to you, big guy!
and ... Wordless Wednesday
Tuesday, April 13, 2010
Tackle It Tuesday: Road Trip
Last week the kids and I hit the road to take advantage of Spring Break and being able to visit with friends. Although planning and packing for a 5 hour car trip and 3-day stay away from home has become more streamlined, it's still an ordeal. Toss in driving and round-the-clock childcare and the thrill of a good challenge gets even better.
Luckily, the kids are good travelers, having become acquainted at a tender age with I-5 and 400+ mile jaunts. I have learned that when traveling, lists are my friend. It helps me when I pack up at home and when it's time to go home. The kids are learning how to pack their own suitcases. Travel Light can actually be our motto now.
Last Tuesday well all hit the beach. Lucky us in SoCal, where it was sunny and warm. The water was cold but the sand was toasty. James actually played in the waves by himself and enjoyed the advance/retreat rhythms of their dance. He grabbed handfuls of wet, gloppy sand and threw them at the waves. He rolled and crawled in the warm sand. He seemed to enjoy walking on the pebbly patches of beach in his bare feet. He sidled away to slide at the play area.
The kids' Easter beach towels were christened and I used all the extra towels in the van. Hey, I know where my towels are ... I am a frood and hoopy mom.
There was packing and unpacking of clothes and groceries. Exploration of where we stayed and our friends' house. Cooking and eating of good food by all, and consumption of strawberries and fine sherry by the grownups. I kept up the potty training, did 5 loads of laundry and ran 4 dishwasher loads while we were there. Oh, and gave 2 baths to remove approximately 10 pounds of sand from my children.
I know it's counter-intuitive to say that we tackled a vacation and won, but that's almost what it felt like!
This Saturday, we'll be tackling the Walk for Autism Speaks. We are looking forward to it!
What was your challenge? Read and be inspired at Tackle It Tuesday on 5 Minutes for Mom. Post your own story to share with other Tacklers.
Monday, April 12, 2010
Magic Marker Monday: "F"
Because James' regular school was off last week and his second school was not, there was no SHAPE and I got to sit in on James' Friday morning preschool class. There I got to help James sit for circle time, play at recess, and work on his crafts.
The feather project was awesome! But in the flurry of glue and feathers I dared not get out the camera. The Frog book was much easier, as only crayons were required. We all read this charming little 4-page book together (twice) and then social sciences swung into action!
The table with all girls coloured their frogs purple, as 2 of the more outgoing girls loudly declared them to be cool. Our table had some variety. James decided that at least one of his frogs needed to be red. I helped rearrange his fingers so his hold on the crayon was less of a death fist grip. Once he finished colouring all the numbers and his one frog, he swirled both hands on the page with 2 different colours. He liked this so much that he continued on the back of the page. And then he wrote his name in yellow!
We are gearing up for our walk this coming Saturday at Infineon Raceway. If you haven't heard about Walking for Autism, please take a moment to look at my pledge page and consider helping Autism Speaks advocate for more research and answers for our children and ourselves.
Visit 5 Minutes for Special Needs for more Magic Marker Monday. View the artists at work or share your creativity!
The feather project was awesome! But in the flurry of glue and feathers I dared not get out the camera. The Frog book was much easier, as only crayons were required. We all read this charming little 4-page book together (twice) and then social sciences swung into action!
The table with all girls coloured their frogs purple, as 2 of the more outgoing girls loudly declared them to be cool. Our table had some variety. James decided that at least one of his frogs needed to be red. I helped rearrange his fingers so his hold on the crayon was less of a death fist grip. Once he finished colouring all the numbers and his one frog, he swirled both hands on the page with 2 different colours. He liked this so much that he continued on the back of the page. And then he wrote his name in yellow!
We are gearing up for our walk this coming Saturday at Infineon Raceway. If you haven't heard about Walking for Autism, please take a moment to look at my pledge page and consider helping Autism Speaks advocate for more research and answers for our children and ourselves.
Visit 5 Minutes for Special Needs for more Magic Marker Monday. View the artists at work or share your creativity!
Saturday, April 03, 2010
SOOC: Invisible Victories
Looks simple, doesn't it? A kid eating ice cream. But it's really several victories.
- James is sitting down in a chair at an outdoor restaurant and *staying seated*
- James is using a spoon properly and on his own. This is huge. He used to not be able to grasp a spoon properly. Often times he'd lose control of his wrist, and the spoon and its contents would flop upside down.
- He's trying something new. That's not ice cream, it's a Dole Whip, and he wants to eat the whole thing! Both my kids are picky eaters, and I love it when they discover something new to love to eat.
- James is talking, telling me it's yummy
I see things differently since we started on this journey with James. I stop and look more. There is so much to see.
Slurping Life is on vacation this week. Happy Easter weekend wishes to you all.
Friday, April 02, 2010
World Autism Awareness Day
If you've visited this blog before, you might notice a change in how it looks. In honour of Autism Awareness Month and World Autism Awareness Day, I've changed to design to blue, the colour of World Autism Awareness Day.
The United Nations has made April 2 a special day. I just have to pull out a quote from the Secrety-General's message:
I'd also like to post that I will be participating in this year's Autism Speaks Autism Walk. Here is a link to my fundraising page. Please take a moment to visit for more information about the walk, why I am walking, or to find out how you can help.
Yes, awareness about autism is getting more mainstream, but there is a long way to go for finding answers and knowing what causes autism, understanding why this is happening, and being able to take steps to prevent it from our children being born with this condition in increasing numbers:
As a parent, though, I will always be worrying about how to help James and make the best choices for him (for as long as he needs me to do that). I keep reading as much as I can and trying to keep perspective that this is all work in progress. I will celebrate all the good times and triumphs. I will keep loving him and advocating for answers.
The United Nations has made April 2 a special day. I just have to pull out a quote from the Secrety-General's message:
"Let us also look within, and re-evaluate our attitudes and those of our societies so we can remove the prejudices that discriminate against persons with disabilities."
-- Secretary-General Ban Ki-moon
Message for World Autism Awareness Day, 2 April 2010
I'd also like to post that I will be participating in this year's Autism Speaks Autism Walk. Here is a link to my fundraising page. Please take a moment to visit for more information about the walk, why I am walking, or to find out how you can help.
Yes, awareness about autism is getting more mainstream, but there is a long way to go for finding answers and knowing what causes autism, understanding why this is happening, and being able to take steps to prevent it from our children being born with this condition in increasing numbers:
- The CHARGE Study at UC Davis
- Research and Programs to help with Speech and Language
- Advocating for our Children
- Community Support and Training for Educators
- Walking for awareness and answers
As a parent, though, I will always be worrying about how to help James and make the best choices for him (for as long as he needs me to do that). I keep reading as much as I can and trying to keep perspective that this is all work in progress. I will celebrate all the good times and triumphs. I will keep loving him and advocating for answers.
Thursday, April 01, 2010
In Your Face
James has been testing us a lot lately. His schedule started to fall apart even before Spring vacation, and without the familiar people and routines he has started to test us all to see how far he can go.
You say "come on, James, let's go here" and he runs the other way, laughing. Even better, he'll sidle while looking at you with an expectant, gleeful look of anticipation. Stinker! I say that with love.
He will grab onto things and laugh, throwing them if you try to get him to put it back down. This afternoon I caught him petting another preschooler's hair, ignoring the boy's polite request to stop it.
He will ask to do something and, if met with a "no", he will smile big and reply "Mommy said ... YES!!!" Or I will ask him to do something and he will say "NO! I don't wanna!" and try a couple of tricks ...
The ultimate reminder of consequences of ignoring us *used* to be "Do you want to have a time-out in a corner?" Not so much any more. It works at school still, but not at home. The ultimate recapitulator is now the threat of making him take a shower, followed by hair washing and Darth HairDryer. But that kind of sets up a negative reinforcement for personal hygiene, so I can't really use that one. Unfortunately.
I keep telling myself this is a step forward. His teachers tell me most kids go through phases like this. And I would rather he be in my face, an adorable little boy pest, than quietly sitting in a corner, looking off in the distance into nothing that I can see, which is what he was doing at age 2.
You say "come on, James, let's go here" and he runs the other way, laughing. Even better, he'll sidle while looking at you with an expectant, gleeful look of anticipation. Stinker! I say that with love.
He will grab onto things and laugh, throwing them if you try to get him to put it back down. This afternoon I caught him petting another preschooler's hair, ignoring the boy's polite request to stop it.
He will ask to do something and, if met with a "no", he will smile big and reply "Mommy said ... YES!!!" Or I will ask him to do something and he will say "NO! I don't wanna!" and try a couple of tricks ...
The ultimate reminder of consequences of ignoring us *used* to be "Do you want to have a time-out in a corner?" Not so much any more. It works at school still, but not at home. The ultimate recapitulator is now the threat of making him take a shower, followed by hair washing and Darth HairDryer. But that kind of sets up a negative reinforcement for personal hygiene, so I can't really use that one. Unfortunately.
I keep telling myself this is a step forward. His teachers tell me most kids go through phases like this. And I would rather he be in my face, an adorable little boy pest, than quietly sitting in a corner, looking off in the distance into nothing that I can see, which is what he was doing at age 2.
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