Yay, we got to take a few mini vacations! My husband is still saving up vacation days with his new job so we made weekend trips to Santa Cruz and Southern California. Both trips involved major time at the beach. Both kids loved it, and by the time of our last day at Newport Beach, James had started to bat away our hands so he could stand alone n the surf, and brace his legs against the waves.
He didn't mid getting sandy, but he remains a picky eater. After some frustrating tries to get more than milk inside of him during the Santa Cruz trip, I made PB&J sandwiches for James to take to SoCal. My husband rolled his eyes a bit, but I've seen the prices for PB&J on the menus -- $3-7, and there's no guarantee that James will like the (1) bread), (2)PB, or (3) jam/jelly.
They home-made "Shamiches"? So. Much. Easier! James gobbled them down. And thank goodness Trader Joe's sells watermelon precut, in a nicely sealed plastic bowl. Money well spent and it kept James happy, still, and hydrated at the beach.
What a nice change for both kids to jump, run, and yell as loudly and long as they liked! They are both really good travelers on long car trips, and it feels good to having something worth their while at journey's end. James kept up his words with "bird!", "wah-er!" (water), "Mennon!" (watermelon), "bwoo!" (blue) ... and "haycopper!" for when the helicopter buzzed us at the Newport shoreline. He also likes to count. He can get up to 14 and count back down from 5. He can sing the A-B-C song, but doesn't really know the letters.
A Blog to chronicle my son's journey through developmental delays and dealing with austisic spectrum disorder.
Thursday, July 31, 2008
Thursday, July 24, 2008
Is the Coast Clear?
Wow, one bug, four people, a month of recovery. Let's just say I hate the summer flu!
For a couple of weeks, we all took turns succumbing to The Scourge. Oh, it was fiendishly clever. First it was James, poor baby! He was over the worst of it by Day Three. Um, but on Days One & Two he couldn't even keep water down, so in we popped to the doctors' office; we had to give him 2 shots in his legs to quell the raging ear infection that was his bonus prize. After that got under control, things headed uphill pretty quickly. By Day 5, I was down with it, as well as the grandparents.
My husband and daughter lingered in Healthland through Day 10, then fell to their dooms. By then I was able to make it through bedtime without collapsing on the sofa every couple of hours.
Then, the catch-up. No, not the laundry -- that would have been Truly Hideous. The paperwork, the phone calls, the delayed follow-throughs. James was accepted into the CATS program at Sonoma State U. It sounds like an internship that could be quite interesting. His sister is starting Kindergarten next month and can I just vent here and now about my amazement that this humble grade level involves almost more preparation than I had to do to get into college? The paperwork, lines, appointments, more paperwork, reviews, interviews, assessments ... Holy Rainbow Cow!
Some big shining rays of light:
* James is talking more and more; especially since he started the preschool camp/classes offered through our local city parks & rec.
* James did very well in a mainstreamed environment. His teachers all loved him too and he liked them.
* James is digging swimming. He has gone from panicking and clutching at me to letting me put my hand on his tummy to boost/guide him and he uses his arms and legs to "swim" in proper form. He also likes to get out of the pool, count to three, and then launch himself off the edge to me. This is more than his older sister can do, and she has two additional years and actual swim lessons to her credit.
* James' speech & language therapist says that swimming is great for fostering speech and vestibular activities.
* James gives me real hugs and kisses now. He really misses me if I am out of the picture and shows it with words. For example, this morning I went out to feed the cat. His grandmother said he saw me out there and said "wanna go mommy" for "I want to go to mommy." After a year or more of playing second fiddle to apple bars, this is a great feeling for me!
Oh, and James has been growing. He is over 40" tall and just 3 1/2 years. His feet look Amazingly Sturdy. And we have 6-foot (and more) giants in both our families. He is is still our big sweetie, and we love him so!
For a couple of weeks, we all took turns succumbing to The Scourge. Oh, it was fiendishly clever. First it was James, poor baby! He was over the worst of it by Day Three. Um, but on Days One & Two he couldn't even keep water down, so in we popped to the doctors' office; we had to give him 2 shots in his legs to quell the raging ear infection that was his bonus prize. After that got under control, things headed uphill pretty quickly. By Day 5, I was down with it, as well as the grandparents.
My husband and daughter lingered in Healthland through Day 10, then fell to their dooms. By then I was able to make it through bedtime without collapsing on the sofa every couple of hours.
Then, the catch-up. No, not the laundry -- that would have been Truly Hideous. The paperwork, the phone calls, the delayed follow-throughs. James was accepted into the CATS program at Sonoma State U. It sounds like an internship that could be quite interesting. His sister is starting Kindergarten next month and can I just vent here and now about my amazement that this humble grade level involves almost more preparation than I had to do to get into college? The paperwork, lines, appointments, more paperwork, reviews, interviews, assessments ... Holy Rainbow Cow!
Some big shining rays of light:
* James is talking more and more; especially since he started the preschool camp/classes offered through our local city parks & rec.
* James did very well in a mainstreamed environment. His teachers all loved him too and he liked them.
* James is digging swimming. He has gone from panicking and clutching at me to letting me put my hand on his tummy to boost/guide him and he uses his arms and legs to "swim" in proper form. He also likes to get out of the pool, count to three, and then launch himself off the edge to me. This is more than his older sister can do, and she has two additional years and actual swim lessons to her credit.
* James' speech & language therapist says that swimming is great for fostering speech and vestibular activities.
* James gives me real hugs and kisses now. He really misses me if I am out of the picture and shows it with words. For example, this morning I went out to feed the cat. His grandmother said he saw me out there and said "wanna go mommy" for "I want to go to mommy." After a year or more of playing second fiddle to apple bars, this is a great feeling for me!
Oh, and James has been growing. He is over 40" tall and just 3 1/2 years. His feet look Amazingly Sturdy. And we have 6-foot (and more) giants in both our families. He is is still our big sweetie, and we love him so!
Saturday, June 28, 2008
WALL*E Walking, a movie review
**warning, semi-spoilers ahead**
My husband and I took both our kids to the first matinee showing of WALL*E this morning. James did pretty well, considering our seats were waaaay up front and they'd cranked the sound (not that it was needed, the entire audience of all ages fixed rapt attention on the screen).
About 20 minutes in, James had reached his limits of maintaining through storms, explosions, and loud machinery, and we started a slow dance around the theatre. Up the stairs. Then down. On his tummy. Always checking to make sure mommy saw he'd oozed down another riser. Up to the front corner of the screen, getting ready to run and yell. Another 20 minutes, easy. So then we went walkies. I got a bathroom break and he got a noise break. We missed the big jail break scene, but what the hey.
James started showing wear and tear from hunger. He wasn't interested in his cereal snacks and had finished his water. His dad reports the last portion of the movie was spent in the lobby, screaming into the carpet, or superglued to the car video game.
So, hard to tell. Loud noises and explosions: bad. EVE is definitely scary for little ones at first -- WALL*E was really loney! If loud, roaring (or blasting) noises set your children off, avoid until you can control the sound!
Lack of food definitely had a negative impact.
But: James really liked the cockroach. And the singing & dancing. I think the machine noises (that were communication) intrigued him. The robots flying around inside the cruiser made him go "Woah!" in awe and respect.
My husband and I really liked the movie. The ending and end credits blew me away. We'll have to see it again sometime, to catch the parts we missed.
PS: James loved Presto, the animated short that came before the movie. Our daughter loved both films.
My husband and I took both our kids to the first matinee showing of WALL*E this morning. James did pretty well, considering our seats were waaaay up front and they'd cranked the sound (not that it was needed, the entire audience of all ages fixed rapt attention on the screen).
About 20 minutes in, James had reached his limits of maintaining through storms, explosions, and loud machinery, and we started a slow dance around the theatre. Up the stairs. Then down. On his tummy. Always checking to make sure mommy saw he'd oozed down another riser. Up to the front corner of the screen, getting ready to run and yell. Another 20 minutes, easy. So then we went walkies. I got a bathroom break and he got a noise break. We missed the big jail break scene, but what the hey.
James started showing wear and tear from hunger. He wasn't interested in his cereal snacks and had finished his water. His dad reports the last portion of the movie was spent in the lobby, screaming into the carpet, or superglued to the car video game.
So, hard to tell. Loud noises and explosions: bad. EVE is definitely scary for little ones at first -- WALL*E was really loney! If loud, roaring (or blasting) noises set your children off, avoid until you can control the sound!
Lack of food definitely had a negative impact.
But: James really liked the cockroach. And the singing & dancing. I think the machine noises (that were communication) intrigued him. The robots flying around inside the cruiser made him go "Woah!" in awe and respect.
My husband and I really liked the movie. The ending and end credits blew me away. We'll have to see it again sometime, to catch the parts we missed.
PS: James loved Presto, the animated short that came before the movie. Our daughter loved both films.
Friday, June 27, 2008
Thank God I Had Cats
Cat ownership has somewhat prepared me for toddlers and preschoolers. Especially the "I know you really want me to do this so I won't/I'll do something completely different" training ... and all the times I had to wrap and pill sick cats.
Cats hate meds.
So do toddlers/preschoolers.
My daughter has learned to heed the "Are we doing this easy way or the hard way?" question.
James is learning.
He is rather good at letting the amoxicillin sit in his mouth a bit before just letting it dribble back out. His hand moves at warp speed unexpectedly to knock medication from my hands. If I try administering liquid meds with that weird pharmaceutical spoon, he blows and spits it all over before it gets inside of him. Yes, this is the same child who has not yet mastered blowing bubbles and still has trouble sometimes blowing a whistle.
He can also squirm and twist like an eel, showing considerable strength before going completely boneless and oozing out of most grips.
Thank goodness for all my training with wrapping, holding, and pilling cats. Especially the feral ones. Builds confidence. I get best results of we're both on the sofa or floor. I use my legs and upper arms to pin his thrashing appendages and get a hold on his head with my chin and shoulder.
It helps if I can administer the meds while his head is tilted slightly up. He will now usually let the meds sink in slowly through the side of his teeth. I give him plenty of time to absorb & swallow. In extreme situations, I get his mouth open and set the spoon/dropper on the back of his tongue and release. Hardly anything gets back out that way, but I think we both prefer the easier way.
James gets full points for vocalizing during the entire encounter, starting with "NO!" and trying his charm with "All done!" and "Tank you!" We are both happy when med time is truly All Done. Then he gets some milk or ice water. And a hug. And a kiss or ten.
Two days down and only five more to go. Wahoo!
Cats hate meds.
So do toddlers/preschoolers.
My daughter has learned to heed the "Are we doing this easy way or the hard way?" question.
James is learning.
He is rather good at letting the amoxicillin sit in his mouth a bit before just letting it dribble back out. His hand moves at warp speed unexpectedly to knock medication from my hands. If I try administering liquid meds with that weird pharmaceutical spoon, he blows and spits it all over before it gets inside of him. Yes, this is the same child who has not yet mastered blowing bubbles and still has trouble sometimes blowing a whistle.
He can also squirm and twist like an eel, showing considerable strength before going completely boneless and oozing out of most grips.
Thank goodness for all my training with wrapping, holding, and pilling cats. Especially the feral ones. Builds confidence. I get best results of we're both on the sofa or floor. I use my legs and upper arms to pin his thrashing appendages and get a hold on his head with my chin and shoulder.
It helps if I can administer the meds while his head is tilted slightly up. He will now usually let the meds sink in slowly through the side of his teeth. I give him plenty of time to absorb & swallow. In extreme situations, I get his mouth open and set the spoon/dropper on the back of his tongue and release. Hardly anything gets back out that way, but I think we both prefer the easier way.
James gets full points for vocalizing during the entire encounter, starting with "NO!" and trying his charm with "All done!" and "Tank you!" We are both happy when med time is truly All Done. Then he gets some milk or ice water. And a hug. And a kiss or ten.
Two days down and only five more to go. Wahoo!
Thursday, June 26, 2008
Better! And Need to Know?
After three days of yamminess and really not feeling well, James is better! 
He had his first day of preschool school and SHAPE this week. I am so happy to see him back to bouncy and sunny. It was a bit hard, trying to explain to the advice nurse and doctor why I couldn't ask James where it hurt. I never know what lights up in peoples' heads once I mention that he's on the autistic spectrum.
I had to ask the doctor to put his diagnosis in his medical records, as the advice nurse said it never showed up in what she had access to. That felt weird. I usually say that James has language delays and leave it at that. Is it really that necessary to have medical practitioners know that James is on the autistic spectrum? Has anyone else found it to actually be helpful?
He had his first day of preschool school and SHAPE this week. I am so happy to see him back to bouncy and sunny. It was a bit hard, trying to explain to the advice nurse and doctor why I couldn't ask James where it hurt. I never know what lights up in peoples' heads once I mention that he's on the autistic spectrum.
I had to ask the doctor to put his diagnosis in his medical records, as the advice nurse said it never showed up in what she had access to. That felt weird. I usually say that James has language delays and leave it at that. Is it really that necessary to have medical practitioners know that James is on the autistic spectrum? Has anyone else found it to actually be helpful?
Monday, June 23, 2008
Sunday, June 22, 2008
Night Swimming
Not only do I like the song, I like to do it too. Which makes it a great posting title, but I digress ...
It's been unusually hot around here all week. Roast, roast, crisp, and schizzle! James does not do well in heat. He melts and gets cranky. The school buses and summer school do not have a/c. Thank goodness he's back home before 12:30pm!
So on Friday, I took he and his sister to the gym's pool after dinner, right about sundown. It was still like 90° and nice without the sun beating down on us. Big sister has been having swimming lessons, so she put on her inflatable ring/tube and hopped right in.
James was not so sure. He wanted his legs in the water and he wanted to keep his shirt on. After a bit, I coaxed him into going shirtless (this is tough for James). We went slowly down the steps, with James grabbing me as much as I was holding him. He got to watch the kids playing and his sister having fun. The gym is right by the airport, so he got to see a low-flying plane coming in for a landing -- he lit up as he waved to it and yelled "Hi, plane"
After a while, I started getting him a little more wet. James got nervous, and started to talk in babble-speak -- but he liked it too. Then I started singing and moving him. His sister's teacher from last year taught us to slowly tip them side to side, singing "Tick-tock, tick-tock, I'm a little cuckoo clock," so I did that too. He loved that. He even tried leaning over further to drink the water.
We went all around the pool. After about 45 minutes, I got James to float on his tummy, with me just holding him under his arms, and kick with his feet -- yay!!! He even let me float him on his back for a little bit. We all had to leave when they closed the pool.
We all really enjoyed doing this, especially at the end of a long, hot day! It was so hot getting back into the car (in the 80° range) that we stopped off for ice cream on the way home. We were going to get snow cones, but the gym's snack bar had closed.
I am so proud of how much more comfortable James is in the water. I never thought he'd let me float him and start kicking his legs on his own. This is partly because he's been uneasy even in the tub -- he has trouble balancing in the water and doesn't like it splashing on his face. The other part is that I know James has trouble "knowing" where his body is in space, and floating in water would seem to make that worse. Activities that involve the vestibular areas of his brain have been a real challenge for him.
I guess you can never underestimate the power of doing something for fun, and being surrounded by other kids doing the same thing and enjoying themselves.
It's been unusually hot around here all week. Roast, roast, crisp, and schizzle! James does not do well in heat. He melts and gets cranky. The school buses and summer school do not have a/c. Thank goodness he's back home before 12:30pm!
So on Friday, I took he and his sister to the gym's pool after dinner, right about sundown. It was still like 90° and nice without the sun beating down on us. Big sister has been having swimming lessons, so she put on her inflatable ring/tube and hopped right in.
James was not so sure. He wanted his legs in the water and he wanted to keep his shirt on. After a bit, I coaxed him into going shirtless (this is tough for James). We went slowly down the steps, with James grabbing me as much as I was holding him. He got to watch the kids playing and his sister having fun. The gym is right by the airport, so he got to see a low-flying plane coming in for a landing -- he lit up as he waved to it and yelled "Hi, plane"
After a while, I started getting him a little more wet. James got nervous, and started to talk in babble-speak -- but he liked it too. Then I started singing and moving him. His sister's teacher from last year taught us to slowly tip them side to side, singing "Tick-tock, tick-tock, I'm a little cuckoo clock," so I did that too. He loved that. He even tried leaning over further to drink the water.
We went all around the pool. After about 45 minutes, I got James to float on his tummy, with me just holding him under his arms, and kick with his feet -- yay!!! He even let me float him on his back for a little bit. We all had to leave when they closed the pool.
We all really enjoyed doing this, especially at the end of a long, hot day! It was so hot getting back into the car (in the 80° range) that we stopped off for ice cream on the way home. We were going to get snow cones, but the gym's snack bar had closed.
I am so proud of how much more comfortable James is in the water. I never thought he'd let me float him and start kicking his legs on his own. This is partly because he's been uneasy even in the tub -- he has trouble balancing in the water and doesn't like it splashing on his face. The other part is that I know James has trouble "knowing" where his body is in space, and floating in water would seem to make that worse. Activities that involve the vestibular areas of his brain have been a real challenge for him.
I guess you can never underestimate the power of doing something for fun, and being surrounded by other kids doing the same thing and enjoying themselves.
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