SOOC Sunday: Playing With Dad

Playing with James can be a challenge. He loves people and playing, but it seems like he has real difficulties in processing the language spoken around him. He can be a roving, wriggling bundle of energy. Exhibit A:

James loves his Daddy, even if a large amount of play time is spent playing tickle and run away.

We've kind of had a tough Father's Day this year. James is demanding a lot of attention to keep him out of mischief (electrical sockets, plugs, and putting toys in his mouth, etc.). His sister, for some reason, kept having melt downs. A little after lunch, I declared it a Jonah Day. There were some moments where I held my breath and counted 10. Even on difficult days, though, love is there.

Having read Melody's post over at Slurping Life, I don't feel so alone.

Visit Melody and check out SOOC Saturday/Sunday entries past & present. No cropping or fixing -- it's life, straight out of the camera.

Repeat-Rewind

James has a new focus this week. He wants to gather and handle some of his favourite DVDs while he watches Blues Clues or YoGabbaGabba. He must have his blankets.

There will be breaks for jumping on the trampoline. There will be intermittent games of peek-a-boo. There will be good sentences used to negotiate which show to watch or comment on things he likes.

I am not a fan of the mess this makes, but I do like the interactions. Including the one called "clean up." Luckily, he likes this one too.

Tackle It Tuesday: Pulling Funding Out of a Hat

Here in California, news services have been relentlessly passing along the bad news most parents are having to deal with: lack of funds means cuts in services. Class sizes in public schools are increasing again, because the district is cutting teachers (not administrators, but the front line teachers). Special needs kids get even more cuts, because they have more needs. I think this is crazy and short-sighted.


Parents know that sooner or later The System is going to have to deal with their kids with special needs. For years we have been told by professionals that the sooner our son's needs were assessed and addressed, the more progress he would make toward a more mainstream existence and that he would tend to have fewer problems later in life.

Sure the politicians get closer to a less out of-whack-budget by denying services to my son now, as well as hundreds of thousand others. What is their genius plan for dealing with all the needs that balloon out of control because there was no help up front, early on, when these people could have been helped to lead more independent, happy lives? Well, they have no plan, because they'll be out of there and on to greener pastures. Parents and middle-class America (and Californians) will be left holding the bag.

Three years ago I would have sucked it up, given up things I'd treated myself to, like extra social events, new shoes, and eating out -- then used my paycheck to get my son what he needs. I can't do that now because I left my job to coordinate care and services for my son, as well as work with him as much as I can. I've already given up those extras. Our family is down one paycheck and took a few bumps down in healthcare (which, thankfully, we still have). And there are speech and P/T services that are needed by James yet are not covered by medical or school services. Our wonderful North Bay Regional Center's budget has been slashed, and therefore, James is receiving less funding and services.

I can't be the governor or have the budget folks listen to my emails, but I can try help find some funding for local programs that still soldier on, doing it for the kids. This Spring, James and I walked and raised funds for Autism Speaks. Thank you everyone for helping us do that! Next up is raising more funds for the CATS Program. Actually, we've has a successful small fundraiser at Powell's, our local candy store. Now I am looking into working with a local kids' place to have a money-raising play date.

To kick this off, I talked with the owner of said kids' place, who was wonderfully warm and sympathetic. Next, I kicked the idea around with several parents, who liked the idea. Next up I will go back to the kids' place owner and get some possible dates about 3-4 weeks down the road. Another parent is promising to email me a list of other parents who'd like to participate. I'll offer up some dates and see which one gets the best response, then move forward to booking the date and getting the word out there.

A lot of work? You bet. Reason why? The best possible:

This may not be housework, but it's sure part of my:

Magic Marker Monday: Blue

I finally opened the bag containing James' last pieces of artwork from his preschool. I cried. It's almost as bad as sorting the outgrown clothes out of his closet. After seven years, you think I'd have learned to deal a bit better. But I digress.

The colour of the month was blue. I like how James got to try various media with one colour. I have the car in several colours. He likes the red one best so it's still up on his wall.

I like Seeing the dot and painting streaks on the car. James had a bit of fun there. This is great because when he first started preschool it was a real struggle to get him to make dots with the big Bingo markers -- even with someone's hand guiding him. I think the blue car will go up on the wall too.

The birds are quirky -- they have personality. For the first time, I see 2 shades of a colour on a project -- interesting! And I like how they kept the blue bird theme but changed the paper colour and detailing. James loves to glue things down now. I am pretty sure he had some help with the eyes though. I remember his Picasso Bear ...

Visit 5 Minutes for Special Needs for more Magic Marker Monday.



  

SOOC Saturday: Dit Fromage

I hope I have not warped my son too much. Out comes a camera and his first response is to face it and say "Cheese!" Last weekend we visited a wonderful park in So Cal. It had a skateboard park, ducks, teen-aged goslings, & a dog park. Oh, and a playground for just the age groups of James and his sister. Of course I had my camera out to record this wonderful park, why do you ask?

The Slurping Life captured some drama of its own. Visit Melody and check out SOOC Saturday/Sunday entries past & present. No cropping or fixing -- it's life, straight out of the camera.




  

Happy Meal

James is a picky eater, and thankfully does not much care for fast food. That doesn't mean he does not know how to enjoy a Happy Meal:

James' happiest meals are when the whole family sits down to dinner. Being a picky eater, his dinner remains consistent. Baked chicken nuggets (must be crunchy), sliced apples, something crunchy and salty (usually pretzels). Sometimes he will prefer a sandwich. He adores slices of watermelon. Sometimes he will also ask for a yogurt squeeze-up.

PS: That Shrek doll? Sorry ... action figure ...
Did not stop saying "Ow!" and "Cut it out!" for the next 95 miles up I-5. He had such a big grin on his face that I didn't have the heart to make him stop.

Being Away

We've just come off a roller coaster of end-of-school activities and a road trip to Southern California and back. After days of being off schedule and waking up in new places and seeing people not in his usual routine, James is settling into his last summer preschool session for this month.

I could tell that James both liked the change-up and missed his comfort zones. I think it's good to keep stretching him a bit so he doesn't get used to a set routine, group of people, and environment.

The long car trips were tough for him, but he hung in there, happy to travel (and fight) with his sister. He loved all four of us together in one hotel room, but missed sleeping in his own bed at night. Because James rolls off a regular bed (he's quite the physical sleeper) I've resorted to putting his old crib mattress on a picnic blanket on the floor of the hotel room and letting him sleep there with his beloved blankies. The good side of picky eaters is that there are few foods to pack and store, and they eat from our stash for almost the entire trip.

For an entire day he was on his own with his Dad. It was a Learning Experience (or 10) for them both. He got to reconnect with cousins, aunts, and his Grandpa. I could tell when he was getting tired, but he still faced every situation with a smile. Unless it was a trip to the bathroom that he did not instigate. Can't win them all, I guess. But hey! His potty training held firm. I was so proud of him (and relieved; last trip south we took was when he started holding everything in).

He got to walk, watch skateboarders, run & play at the beach, and explore new things. His face lit up with a wonderful expression when we got home late one night and he saw his own bed, waiting just for him.