Tuesday, August 11, 2009

Try It Tuesday: Special Olympics, Special Lady, Special Kids

I don't know much about Eunice Kennedy Shriver, but I had the pleasure of volunteering for the Special Olympics in HS (early 1980s) and in reading about her in the papers today I am impressed with her work to teach, encourage, and challenge special needs kids.

Then these paragraphs caught my eye:
The next generation of the Kennedys often cited Eunice as the family member they looked up to most.

...

Yet Shriver, the mother of four sons and a daughter, thoroughly believed "in motherhood as the nourishment of life," once writing that "it is the most wonderful, satisfying thing we can do."

...

"If I [had] never met Rosemary, never known anything about handicapped children, how would I have ever found out? Because nobody accepted them anyplace." (Eunice Shriver)

...

In 1961, Eunice Shriver turned Timberlawn, the family farm in Maryland, into a free day camp for mentally disabled children. She would get down in the dirt with campers, play in the sandbox, pitch softballs or teach them to swim. Shriver had them riding horseback and shooting bows and arrows.

"Nobody else's mother was doing anything like that," Maria Shriver said in the 1994 book "The Kennedy Women," by Laurence Leamer. "It was always my mother following her own gut going against the grain."
(source: LA Times)


Talk about the epitome of Tackle It/Try It Tuesday! I salute Mrs. Shriver, and moms and caregivers everywhere who follow what they know and feel to make the lives of our special kids happier and better.

My own personal quest this summer? Keeping James challenged with more mainstream activities. He has become potty trained during the day over the past school year and can communicate with others verbally (which is most excellent in itself). Getting him more swim time. He had a month of summer school in June, then speech therapy weekly, 2 sessions of a morning summer camp, and Music Together. He watched his sister have her head under the water breakthrough and enjoys swim sessions at the pool. We go at least once a week. He has made jumps forward. And grown another inch or so, I swear!

Another salute to Trish, who is taking time to regroup with her family. Thank you for all the information and insights, and best wishes.

James, summer of 2009


Feeling Inspired? Or want to be? Visit Try It Tuesday at 5 Minutes for Special Needs.

Monday, August 10, 2009

Magic Marker Mondays: Face Painting with Frosting!

James loves finger painting. Usually too much for me to feel like I can keep up with it. I have a beaut of a photo of James, clad in a diaper, finger painting in the backyard. He is wearing the paint all over his hair, face, and body. He looks like Baby BraveHeart.

Well, I have yet to find that photo tonight. Meanwhile, here is one of James' first forays into painting with his fingers, using the frosting from his first birthday cake. His first taste of sugar and all those bad dyes.
James paints his face with frosting


Man, he had a blast! My mom had tied helium balloons behind his chair and he started beating them with his hands in a completely joyous session of baby smack down. Completely adorable, and he totally destroyed those balloons by coating them with frosting.

James mixes it up with the balloons and frosting

James, outnumbered by balloons and still swinging


Way to go on those artistic boxing endeavours, James!

Visit 5 Minutes for Special Needs for more Magic Marker Mondays.
Special Needs Blog

Sunday, August 09, 2009

Sunday Special: Daddy's Birthday

This photo is actually from last year, but we loved doing it so much that we did it again this year (but no photos of decoration). Daddy loved his birthday cake that his children made and decorated. We used a Lazy Daisy recipe and white frosting. It made the rainbow sprinkles really stand out.
James puts the sprinkles on his Daddy's birthday cake


Last year, however, there was a fashion show afterward:
Fashion show!

James takes a bow

Saturday, August 08, 2009

SOOC Saturday: A Boy & His Mooey

A friend sent the kids these awesome toys as gifts. They are made of wood & pleather, are shaped like ladybugs and patterned like Holsteins. James' sister has dubbed them "mooies," and they both use them to scoot around on the Pergo floors like crazy:
James on his mooey


I wish the picture included the laughs and cries of "wheeee!" as they race each other and execute 360-degree turns and spins. Some day I'll video it. Right now I really just want to watch and laugh with them.


The Slurping Life is back on track! Visit Melody and check out SOOC Saturday entries past & present!

SOOC Saturday

Friday, August 07, 2009

A Child Is Waiting

I was up late last night and saw the beginning of the 1963 movie A Child Is Waiting.

I had to turn it off, it disturbed me so much. Because the opening sequence haunted me. If we'd had James 40 years ago, he would have been that boy and we would have been told that our best hope was to institutionalize him.

Our sunny, funny, smart James.

Seriously, I have tears in my eyes as I get shivers down my spine, just thinking about it.

If you want to read more, check out this blog post.

Fingers, Hands & Arms

James has trouble grasping things with his hands, unless he initiates the action (then, prepare for a death struggle, should you attempt to break said grip). He has had real struggles with wrist rotation and self feeding. Just look at him this summer:
James eats a snow cone with a spoon


His self feeding skills are much improved, and he eats so much more confidently with a spoon and a fork. It's still a struggle for him to grip a pencil or crayon and make marks on paper, but we're working away at it. Sometimes his hands will flutter up in to the high guard position, like excited little kites. They stay there, as if he doesn't realize his hands and arms are attached to him.
James displays a kite hand while walking

I keep trying to think of new things to try to connect the dots for him. Or, as the case may be, get him more connected with his arms, hands, and fingers.

Wednesday, August 05, 2009

Special Exposure & Wordless Wednesday: Too Cool for School

I found this picture of James from our latest road trip:
James is too cool


He is four and knows what is cool!

For more great images or to join in the fun, Visit Special Exposure Wednesday at 5 Minutes for Special Needs.
5 Minutes for Special Needs
and ... Wordless Wednesday