James is still going through what I hope is a transitional phase. He has been using less words over the past two weeks or so, after a small explosion in his vocabulary. His sleeping patterns are messed up and instead of sleeping at night, I can hear a Party of One in his room. This makes working with his SHAPE asst. the next afternoon extremely challenging. He also is doing more screaming and face hitting, which I try to counter with asking "What do you want, James?" and "No hitting," followed by time-outs.
I am trying to look on the bright side. My daughter did similar things before leaping forward developmentally. James has largely been sunny, serene ... and about a year "behind" (developmentally). He still loves going to school and taking the bus. He loves looking at books, the Cars trailers, and singing. His sister can get him to play with toy fish and cars. He loves to do his Flash cards with her. I imagine that it must be pretty frustrating to start to realize all the things you could do ... and then realize there are some things your fingers just can't do right away, or that you are trying your darndest to communicate with people, and it doesn't work. I'd get really tired and cranky too.
So then I try and find ways he can do more things with us, and make sure I make time to just hold him and tell him I love him.
A Blog to chronicle my son's journey through developmental delays and dealing with austisic spectrum disorder.
Tuesday, April 15, 2008
Sunday, April 13, 2008
Take Me to the River
My mom and I took the kids to play in the River this morning. My daughter has been there before, but this is James' first time playing in the water. He really liked feeling the water on his legs and getting cooled off on a hot morning. He threw a few rocks, and really got into a game with his Nana. He stood upstream and emptied a bucket of water on himself. Then he'd laugh and throw the bucket into the current, where it would be carried downstream and scooped up by Nana. Lather, rinse, repeat!
He was really looking around and taking everything in. He called out "bird" when a backbird landed nearby on a log. He went "Qak, qak!" at the ducks flying overhead. And when his sister exclaimed "fish!" he did too. He sang his "walking, walking" song as he plowed through the water. He also loved walking through the trees and grasses to get to and from the beach. I am so proud of the way he totally jumped on board and explored everything around him. And how fortunate that he seems to have grown out of eating rocks!
Up until his nap time, I kept hearing the occassional exclamation of "Wah'er! wah'er!" I am looking forward to summer!
He was really looking around and taking everything in. He called out "bird" when a backbird landed nearby on a log. He went "Qak, qak!" at the ducks flying overhead. And when his sister exclaimed "fish!" he did too. He sang his "walking, walking" song as he plowed through the water. He also loved walking through the trees and grasses to get to and from the beach. I am so proud of the way he totally jumped on board and explored everything around him. And how fortunate that he seems to have grown out of eating rocks!
Up until his nap time, I kept hearing the occassional exclamation of "Wah'er! wah'er!" I am looking forward to summer!
Saturday, April 12, 2008
Ten Things I Love About James
1. His sunny personality; he makes everyone smile.
2. The Look I get when he is testing my limits: part imp, part "I don't care," part "I know you'll love me anyway."
3. The way his face and entire body lights up with joy when he sees things he likes: the moon, the car out back, favourite people, or the school bus.
4. Hearing him say "Mama" in his soft voice.
5. Hearing him bellow "CAR!!!!" when I show him the Cars trailers on my laptop.
6. Hearing him make horses say "moooooo!" ... and then laughing.
7. Schnuggles. Nobody does a happy nestling wiggle like James!
8. Watching him go up to people who are doing something else, bending over while circling and looking up at them, and having them smile and say "hello!" to him.
9. Watching him run, laugh, and be so happy.
10. The way he looks up and smiles at me.
2. The Look I get when he is testing my limits: part imp, part "I don't care," part "I know you'll love me anyway."
3. The way his face and entire body lights up with joy when he sees things he likes: the moon, the car out back, favourite people, or the school bus.
4. Hearing him say "Mama" in his soft voice.
5. Hearing him bellow "CAR!!!!" when I show him the Cars trailers on my laptop.
6. Hearing him make horses say "moooooo!" ... and then laughing.
7. Schnuggles. Nobody does a happy nestling wiggle like James!
8. Watching him go up to people who are doing something else, bending over while circling and looking up at them, and having them smile and say "hello!" to him.
9. Watching him run, laugh, and be so happy.
10. The way he looks up and smiles at me.
Because I Am
The last few days have been a little hard. James is upset by things that normally don't phase him. He panics when he sees me leaving, which has never been an issue before. There is a little more screaming and a few fewer words at home too. Physical activity really seems to help him, as does music.
Last night after dinner, I took a walk to the local park with both kids. My daughter loved running and James was so excited to see the moon. He would stop and tip his head way up and say "Moon! Mooooon!" I got him to sit on a swing with me for a few seconds, and help push his sister up and down on the teeter-totter. Maybe one day he will enjoy doing these things himself. I hope so!
He liked singing with me at bedtime again. And he is up to listening to three books at bedtime: Rainbow Frogs, The Mouse/Strawberry/Big Hungry Bear and Five Little Ducks.
Wednesday, April 09, 2008
Music is Magic
James has always liked music. He would perk right up if her heard a fun melody on the radio or TV. He has always adored the Baby Eisntein videos. And if someone sings around him: bliss central!
Last year one of my biggest concerns was helping James talk. I was told that "vocalizing" is very important, and often precedes spoken language. So one of the things my husband and I tried was to sing to James and encourage him to sing back a few simple words. My husband also kept bringing home instruments or things that could be used as such. James loves the guitar, keyboard, and lately the drums (!). Introduce something new like a xylophone or glockenspiel and he becomes fascinated. He loves to watch live music performed at our Farmers' Markets.
And yes, singing did help him to vocalize. Now, I can actually hold him before bed or nap time, and we sing together. It is one of the sweetest times in my day.
Last year one of my biggest concerns was helping James talk. I was told that "vocalizing" is very important, and often precedes spoken language. So one of the things my husband and I tried was to sing to James and encourage him to sing back a few simple words. My husband also kept bringing home instruments or things that could be used as such. James loves the guitar, keyboard, and lately the drums (!). Introduce something new like a xylophone or glockenspiel and he becomes fascinated. He loves to watch live music performed at our Farmers' Markets.
And yes, singing did help him to vocalize. Now, I can actually hold him before bed or nap time, and we sing together. It is one of the sweetest times in my day.
Sunday, April 06, 2008
Car!
James has been a big fan of cars for quite a while now.
Last summer, during an impromptu diaper change in a beach parking lot, I stood up from bagging a dirty diaper to see my son "driving" our van. One of the first words he said on a regular basis was "Caaaarr?" That meant he wanted to look out his bedroom window to see the cars on the street.
Trying to be a supportive parent, I sat him on my lap to show him the trailers for the Disney/Pixar movie "Cars" on my iBook. Oops. It became his new obsessive thing. On the one hand, it got him to vocalize. The words "car?!" and "more?!" were quickly mastered, but after six showings in a row of the trailers, mommy needed a break.
James quickly learned to get creative. His next ploy was to come up to me, say "car?" and start making kisses (while looking at me in a beseeching manner) when I did not start up the trailers. Well, that was really hard for me to refuse. Then, he learned that please ("pease") opened so many doors as well! He also mastered the art of saying "vroooooom!!!" -- which became the basis of some of his first imaginative play and play vocalizations.
Oh yeah. Cars have been good to us all!
Last summer, during an impromptu diaper change in a beach parking lot, I stood up from bagging a dirty diaper to see my son "driving" our van. One of the first words he said on a regular basis was "Caaaarr?" That meant he wanted to look out his bedroom window to see the cars on the street.
Trying to be a supportive parent, I sat him on my lap to show him the trailers for the Disney/Pixar movie "Cars" on my iBook. Oops. It became his new obsessive thing. On the one hand, it got him to vocalize. The words "car?!" and "more?!" were quickly mastered, but after six showings in a row of the trailers, mommy needed a break.
James quickly learned to get creative. His next ploy was to come up to me, say "car?" and start making kisses (while looking at me in a beseeching manner) when I did not start up the trailers. Well, that was really hard for me to refuse. Then, he learned that please ("pease") opened so many doors as well! He also mastered the art of saying "vroooooom!!!" -- which became the basis of some of his first imaginative play and play vocalizations.
Oh yeah. Cars have been good to us all!
Friday, April 04, 2008
Many Hands Make Light Work
This morning, James was trying to talk with me. To him, I am sure he was talking in words. What I heard was babbling, but with a purpose. He wanted me to get down his special Flash Cards from his speech therapist.
He sat down expectatly and picked out the cards delicately, with one thumb and finger and shouted out the word on his own, most of the time. What a difference a year makes!
One of the biggest reasons I asked for a referral for James was because his babbling had stopped at about 13 months (right around when he started trying to walk, I later realized) and by 2 years his biggest means of communication were screaming and biting. This was very much out of character for James, who is one of the happiest, sunniest kids I have had the pleasure to know.
I had to insist with his pediatrician for the referral in end of February/early March 2007. In April 2007, a Care Coordinator from North Bay Regional came out to assess our son. She found significant developmental delays and ended up writing purchase orders for services from the following clinics: Early Learning Institute, The Swain Center, and Redwood Pediatric Therapy Associates. She also put James on the waiting list for evaluation at the Collaborative Autism Diagnostic (CAD) Clinic. It would be five months before he was seen at the CAD Clinic, and James was very fortunate to begin receiving services in May.
He sat down expectatly and picked out the cards delicately, with one thumb and finger and shouted out the word on his own, most of the time. What a difference a year makes!
One of the biggest reasons I asked for a referral for James was because his babbling had stopped at about 13 months (right around when he started trying to walk, I later realized) and by 2 years his biggest means of communication were screaming and biting. This was very much out of character for James, who is one of the happiest, sunniest kids I have had the pleasure to know.
I had to insist with his pediatrician for the referral in end of February/early March 2007. In April 2007, a Care Coordinator from North Bay Regional came out to assess our son. She found significant developmental delays and ended up writing purchase orders for services from the following clinics: Early Learning Institute, The Swain Center, and Redwood Pediatric Therapy Associates. She also put James on the waiting list for evaluation at the Collaborative Autism Diagnostic (CAD) Clinic. It would be five months before he was seen at the CAD Clinic, and James was very fortunate to begin receiving services in May.
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