Sunday, November 23, 2008

Better

This week, James is our $6 Million Dollar Guy. He is stronger, faster, bigger! Than last week, that is.

Around Wednesday he was well enough to go back to school and start up SHAPE again. As we took our regular stroll around the block, I noticed that James looked seriously taller and that I hadn't had to roll up his pants. He ran most of the way. It was like he had springs in the bottom of his feet, and he ran with joy. This made me very happy!

He is full of preferences and tells me about them all the time: *red* po'sickles, *my* b'ankie, *more* (Curious) George, and chi'n ta-ta (not "sham'ich"). He wants "Maisy" as his goodnight book. Still not interested in potty training though. Ah well, there's always *next* week!

Thursday, November 20, 2008

ABCs of ER on VaCay

So, we went on this vacation ... and all I remember clearly now are the two hours on the phone with bureaucrats/advice nurses, followed by five hours in the ER.

It started oh so well. So well. James was happy and excited to be someplace new with all of his family. He loves it when we all sleep in one room. The sun was shining and the weather warm. He ate muffins! He had lots of new words.

Then there was a cough. Just a little thing. Then he couldn't settle down for a nap. So I took him for a swim with his sister for about half an hour. It was over 80 degrees in the early afternoon. I whisked both kids out and scrubbed them dry as quickly as I could, then we all went down for a nap. James woke up sick. Fever, hoarse voice, weird cough. Then he tossed his cookies. He seemed to feel better & slept some more. He kept down some water throughout the night and his fever went down a bit.

But by next afternoon, 24 hours later, he was back to tossing cookies, fever, and that weird cough. And listless. Time to call. Here's where it gets tricky.

We have an HMO. With services divided into regions. Bet some of you are already knowing where this is going. Call home region to explain situation and get a new medical number & phone number for region where we currently are. Triage a bit over the phone. This all after 10 minutes of button-pushing, listening to taped messages that have nothing to do with my current situation, and patiently jumping through hoops with a call center agent to reach said advice nurse.

So fine and dandy. I got the new medical number in pretty good time. I always think that if the elevator music hasn't looped on me by the time I hang up. I call the number for the advice nurse in the region where we are now. Oops. Advice nurse gave me the wrong number. I don't even know what it was really to, because I did not want to pay $9.99 so my cell phone could find out.

Called again to our home region to get real number for our current region. Good-bye, another 15 minutes. Meanwhile. James is moaning and hacking on my lap. The bathroom floor hath lost its charm. Thank goodness the tub is *right here* because he's not giving me much warning before doing the old heave ho.

Call the number and pick my way through the new phone tree/taped (irrelevant for me) messages/canned music/bureaucratic phone center agents. Reach new advice nurse. He listens and then tells me he can't treat my son over the phone (my eyes are rolling up and getting a fine view of bathroom ceiling at this point). He then tells me to call 911 for an ambulance.

Wait. What did you just say?

All I wanted was an urgent care appointment (if available) or a recommendation for where to take him. So, there are no urgent care appointments. Okay, So that means the ER. Which med center is closest to us? Please bear in mind that wildfires have been springing up and raging out of control all day here. The air quality sucks and besides the fact that my son's breathing is not normal, going into a fire zone is just plain stupid, not to mention really dangerous. He says if I am not going to call 911 that I should go to the nearest med center. Okay, brainiac, I am not from around here. Where would that be? He gives me a location. I say thanks and hang up. I plug in the address of our hotel and the med center in Yahoo Maps. Goddess, how I love the internet in times like this. Daughter is awake and whining.

Yahoo tells me that the med center is right in the fire zone. Oh, and the two freeways I need to take to get there are completely shut down. Thank you, TV and voices on the phone. So I phone back, madder than spit. I am told by a different advice nurse to call 911. I explain this will freak out my son and make him even sicker. The first med center is in a fire zone. Where is the next closest med center? The nurse explains I need to take my son to the nearest medical center's ER. Yes, which one??? Daughter whining. James throwing up. Me gritting teeth. The nearest med center. He needs immediate care. STAT.

Why the freak didn't AN#1 (in this region) just *say* so? And AN#2: Can you tell me where that would be? This is starting to feel like a sick version of The Dating Game.

No. (That would be telling, #6)

Surprise. Not.

However, AN#2 really was trying to be helpful. She reminded me my hotel had concierge service and could help me. Which they did, bless their hearts. Christine, I will remember you with gratitude forever.

And I have to be honest, UC Irvine was probably the best place to take James. Not only were we completely triaged within 10 minutes of walking in the door (which has never happened with me before), James received excellent care during his entire 5-hour stay.

Final findings: dehydration (over 600 units saline solution via IV drip), croup (my first experience with it can you tell?), and pneumonia (for the bonus points). He had steroids, a 1-hour cool mist treatment, anti-nausea meds, and the first dose of antibiotics. My poor buddy. Thank goodness I brought his blankie and enough brain power to recite his favourite bedtime stories. By the time the monkeys were doing their stuff in "Caps for Sale," James was alert enough to thump his feet along with the story. I was never so happy to see a foot thump.

James is fine now and this is his second day back in school. Wish I could say the same!

Sunday, November 02, 2008

Oh Lucky Little Man

James celebrated the end of Daylight Savings Time the way he has the past three years -- he got up 2 1/2 hours earlier than usual. I was up at 4:45AM. That kid is lucky he is cute! He inhaled a lot of food for breakfast too. He is over 40" now, and I guess we are in for another growth spurt. Yikes!

His new favourite thing is watching the Disney Sing-Along video shot at Disneyland. I like this so much better than Caillou! We watched it 3 times today. I also took him out in the back yard once the sun rose. He explored a lot and had lots to offer talking-wise: "leaf!" "Oooh! Whassat?" "kee-tee" and "I want DADDY!!!" That brought a smile to someone's face!

He loves playing with Play Dough. He and his sister shared a big activity barrel of it for almost 45 minutes this afternoon. He rolled out the dough, asking first for the roller ("Roh-er?" Pease?") and then cutting out as many purple stars as possible, before mushing it all together and starting again. Both kids also spent some time playing with their musical toys with their dad. James flipped through many books. He loves one from Switzerland, from some reason. Bern is his muse, I guess? And it has been pouring cats and dogs outside, so we love the fact that he still uses his trampoline. Go get out that energy, James! And please, have pity on your poor mother and sleep until at least 6:30 tomorrow morning!

Friday, October 31, 2008

Happy Halloween!

This is our first year that both kids really got excited bout and participated in Halloween -- yay!! James was a puppy (gotta love costumes that last for 2 or more years!) and his sister was a fairy queen.

James hung in there with us for about 20 houses. He loved walking around at night and being out with Big Sister. He said "Trick-a-Tee" at quite a few houses and was very good about saying thank you. The only tough times were at the homes with dogs. Especially the one with a friendly collie. "I want UP!!" Yessir! Irony, how I love you so.

Anything with flashing lights were instant fascination for him. I thought we'd never get him away from our neighbour with a strobe light on his front porch. We did get a splashing of rain after a bit, and headed home. James looked very pleased with himself. I am very pleased -- I know there is no way he's going to eat more than 5 of those candy pieces in his treat bag. Score!

Tuesday, October 28, 2008

More in SHAPE

James has started working with his new SHAPE person! So now he also gets some special one-on-one time Tuesday, Wednesdays, and Fridays, instead of just Mondays and Thursdays.

I stayed out of James' line of sight in the next room, reading a book. Just to check in that they didn't need me. They certainly didn't. So after about 20 minutes I moved down the hall to my office. It's dusty! Kidding! Kind of!

James' speech is getting much clearer and he is now saying 3-syllable words that others can easily recognize. Um, I think 3 weeks ago he could not do this. He is working on letter recognition and has a pretty good grip on the alphabet. Listening in today made me smile. There is so much more give & take in the verbal process now in his SHAPE sessions. It used to be almost a monologue for his first SHAPE assistant. He has better focus and can stay with a task much longer than before.

Except if he is cranky. Cranky=all bets off. Cranky prompted throwing of puzzle pieces into the sink (nice arc on your throws, James, BTW) when alone with Mommy and got him another Time Out. Cranky wipes out speech and brings on the screeches and screams. The tears. Cries of "A-Daddy! A-Nana!" And many many tears. James gets tropical storms of emotional outbursts -- fierce, loud, wet, and mercifully brief.

James likes to work with his word cards and can actually talk about what he sees on them. Not a lot, but he's talking!

Sometimes lately, I catch him sizing me up thoughtfully while I am busy at something. His sister does this all the time. I am seeing him do it more and more. It reminds me that I need to watch out for bad habits -- like swearing. A few weeks ago, he repeated a word I'd really rather he forget I said. Yikes! How about a popsickle, James? A red one? Yes, talk about *that* all you like!!!

Monday, October 27, 2008

Pumpkin Express



I got to come along for the 4-class bus trip to Grandma's Pumpkin Patch last week for James' first field trip! He liked the bus ride, the mini corn maze, and playing on the old tractors. When it came to choosing a pumpkin, he was uninterested, but maybe his focus on chips and apple juice from another classroom's snack time had something to do with that.

It was a picture-perfect day, with a cloudless deep blue sky and the sun making things warm, edging on hot. All the moms I talked with agreed that we appreciated the fact that the lot was securely fenced. My guy and several others kept checking the perimeter, just in case ...

Many of the kids fell asleep on the ride home. Not my guy. He wanted to drive!

Sunday, October 26, 2008

I See You


Sometimes, this is how I feel, with the real James peeking out through a window from behind a wall of autism/sensory integration issues/language delays. It makes me desperate to see more of him.

I want to get him out of there.